Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond

Amy Wang-Hiller

Hidden Diagnoses Impact shares stories from people living with EDS, CCI/AAI, tethered cord, brainstem compression, and other complex neurological conditions that are frequently delayed or dismissed in medical care.Hosted by violinist and advocate Amy Wang-Hiller, the podcast explores medical gaslighting, trauma-informed care, disability identity, and rebuilding life after diagnosis. Through conversations with patients, clinicians, and advocates, we transform lived experience into actionable insight and community hope.Ownership & Support: Hidden Diagnoses Impact is owned by Wang-Hiller LLC.

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Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond

Episodes (11)

Aug 13, 2025 Medical Dismissal, Diagnostic Trauma, and Patient Self-Doubt with Dr. Colin Halverson | HDI Podcast
Oct 30, 2024 Redefining Recovery: Christina’s Journey Living with EDS and Its Hidden Challenges
Aug 1, 2024 Patient Advocacy in Need: Kiera’s Dual Journey as a Public Health Scholar and Patient

Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond

Aug 13, 2025
57¾ minutes
38 MB

In this powerful episode of Hidden Diagnoses Impact, Dr. Colin Halverson—medical anthropologist and faculty investigator at Indiana University’s Center for Bioethics—joins host Amy Wang-Hiller to unpack the systemic failures facing patients with rare and invisible conditions, particularly Ehlers-Danlos Syndrome (EDS) and craniocervical instability (CCI). We explore the disturbing impact of medical gaslighting, misdiagnosis, and the psychological toll of repeated clinical dismissal. Dr. Halverson introduces the concept of clinician-associated traumatization and shares research findings showing how dismissal erodes patient trust, fuels self-doubt, and creates barriers to care, especially for younger, disabled, and chronically ill individuals navigating the heal...

Hidden Diagnoses Impact: Unveiling EDS, CCI, and Beyond

Medical Dismissal, Diagnostic Trauma, and Patient Self-Doubt with Dr. Colin Halverson | HDI Podcast

Amy Wang-Hiller

00:00 -55:57